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Not every day is ok?

After I did the talk for Abbie's Army at beauty pageant I was ok. I think I worked myself up to make it through the night. Sunday I was...

Aria and other children who pass from DIPG

I'm sat here crying my eyes out. Another child has passes away from dipg. Addison in the USA who is 11 has just passed away. This...

Do others understand how you are feeling?

I think others try and understand how I feel but it's very difficult unless they have been through this. The pain in unberable some days,...

I have to try and carry on for Aria

I have to try and carry on for Aria. Each day is a battle. I have good and bad days. Today is a better day. I went for a job interview...

How can I carry on without you Aria?

I love you so much Aria. It really really hurts that you are no longer here with us. I can no longer hold you or kiss you. You were the...

How day to day objects can make me cry?

It's so hard some days. Even hoovering the stairs can make me cry! We have pictures of Aria everywhere. I am ok most days walking past...

Some days are easier than others?

Yes this is very true. I feel secure when I'm with my husband. I can do more when I'm with him. He's like my comfort blanket. When he is...

Aria and my grief

Today has been one of those days where everything has made me cry. Looking at anything of hers has made me cry. Which normally this keeps...

Is PTSD real from losing a child?

I've always thought a lot about this. Do parents suffer with PTSD when they loose a child? In my own experience, yes it's very real. I...

Grief & me today

Today has started with me crying. I try and cope each day by talking to Aria and just trying to survive. Arias things have been left as...

What is DIPG?

I want to share all I know about Dipg and want to share with others what Dipg is and does to our children. As I add more to this blog I...

8 months without you

1st of August 2023. Today has been hard, it's been 8 months without you. I have no idea where the time has gone. It feels like yesterday...

What is this all about?

I've decided to write about anything and everything that happens to us or rather me whilst I walk side by side with my grief. Rather than...

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